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Parent to Parent
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Parent Training and Information Center
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SIBSHOPS
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Special Education
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IDEA
Who can become a Pilot Parent?
Pilot Parents are usually family members who have, in the past,
utilized Pilot Parents services for themselves and are well aware of how
valuable it is to have contact with another more experienced family
facing similar concerns. Many of these families find that as time passes
they too are ready to be trained as Pilot Parents. Often we have
families who are recommended by service coordinators, physicians or
other professionals. When this happens we contact the family and offer
Pilot Parent training knowing that these parents have developed the
qualities we are looking for to support new families.
How are Pilot Parents trained?
Pilot Parents can be trained in a couple of ways. We want to make the
training easy for families and individuals. We hold trainings, given by
Pilot Parents staff, several times throughout the year. First, if there
are several families/individuals in a particular support group or region
and they wish to become Pilot Parents, we will be happy to provide a
training at a time and site that will meet their needs. We can also
train an individual family/individual to act as a Pilot Parent when they
feel ready to offer support. Occasionally the issues a family has may be
unique to them and we may not have a call for such a match for some
time. We might match them with another family to utilize some of the
resources and skills they have developed.
What will you learn at the training?
The basic skills needed to be a Pilot Parent.
- How to assist others in similar situations.
- How to support parents and families.
- Where to find information and resources.
- How to communicate effectively.
- How to record and file matches.
What do I do if I want to become a Pilot Parent?
Contact Pilot Parents by phone, fax or email.
What is a Parent Training
and Information Center?
A Parent Training and
Information Center—or PTI—is a terrific information resource for parents
of children with disabilities. Every state has at least one PTI. Each
one has a different name. For example, one of the PTIs in California is
named Matrix Parent Network and Resource Center. The PTI in New
Hampshire is called the Parent Information Center. Whatever the actual
name, each is commonly known as a PTI. Some states also have Community
Parent Resource Centers, or CPRCs. CPRCs do the same work as the PTIs,
but they focus on reaching underserved parents of children with
disabilities, who live in specific areas of the state, including
low-income parents, parents of children with limited English
proficiency, and parents with disabilities. PTIs and CPRCs are funded
through our nation’s special education law, the Individuals with
Disabilities Education Act (IDEA). As you can probably guess from their
name, their purpose is to provide parents with information and training
about:
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disabilities;
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parent and children’s rights
under the IDEA and other relevant laws; and
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resources in the community,
state, and nation.
Parent Centers know about the
needs of children and families. They understand school policies and
practices. Through their experience with the education of children with
disabilities, the needs of families and schools, Parent Centers make
valuable contributions on a local and statewide basis in support of
schools to improve services and outcomes for students with disabilities.
When would I call my Parent Center?
You might call your PTI or CPRC when you have a disability-related,
early intervention, special education, or transition question. The
Parent Center can help you:
Some Centers may also:
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provide information to
teachers and other professionals who work with children with
disabilities;
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help your child understand
his or her rights upon reaching the age of majority; and
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help you participate in
developing your state’s improvement plan.
How do Parent Centers help
parents?
Parent Centers mainly help
parents by providing information on the phone. You have a question, the
PTI/CPRC tries to answer it. They may refer you to other helpful
organizations in your community or offer practical advice.
Centers are run by
well-trained and knowledgeable staff. Most have children with
disabilities themselves. Some may speak more than one language. They
answer the phone prepared to hear your concerns and issues. Most PTIs
have one main office with a toll-free telephone number, so that parents
can call free of charge from anywhere in the state. Many PTIs also have
other offices around the state.
Parent Centers put major
effort into conducting workshops, conferences, and seminars for parents.
In these training sessions, parents can learn about IDEA, the special
education process, recommended practices, and much, much more. Often,
Parent Center staff serve on different local and state level advisory
councils, boards, or work groups that are designed to improve results
for students with disabilities and enhance home-school-community
partnerships. Some Centers also extend their training and information
services to professionals who work with children with disabilities and
their families.
Centers also use snail mail,
e-mail, faxes, and Web sites to share their information. Many Centers
publish newsletters and other written materials. They may also provide
these materials in other languages based upon the needs of families in
the community.
As you know, dealing with
many issues at one time can be overwhelming. An experienced Parent
Center staff member can help you sort through the issues and put them in
perspective. Together, you can brainstorm strategies and possible
solutions. What questions need to be asked? Of whom? What information or
training would be helpful? What does the law say? The PTI/CPRC can help
you address your unique concerns, and expand and build upon your
knowledge and strengths.
Most Centers have limited
resources and don’t go to school meetings to advocate for you and your
child. Some Centers do go to meetings, mainly to offer support to
parents. Most often, the PTI/ CPRC gives you the skills and confidence
to negotiate for your child on your own. This helps you get your child
the services needed to reach his or her full potential.
Will I have to pay for
services?
Most services are free to
parents. However, there may be some services where the PTI/CPRC does
charge a fee. Parents should ask about any costs for services when they
contact the Center.
My son has a disability.
Can the Parent Center help me find resources to help him?
Absolutely. Depending upon
your needs, the PTI/CPRC can usually:
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tell you about any upcoming
workshops related to your son’s disability;
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help you develop your
negotiation skills, so you’re sure his needs are addressed in his
Individualized Education Program (IEP);
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put you in touch with
available parent support groups;
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recommend articles, books,
videos, and organizations;
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share information on
resources and supports available from the school system, community,
state, and national centers, such as NICHCY;
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give you a list of tutors,
special schools, or programs for children with disabilities; and
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refer you to educational
consultants or specialists, so you can learn more about what your child
needs.
We just moved to this
state. Our son needs special education services. We have his old IEP
with us. Can the Parent Center help us?
Sure. First, the PTI will
probably ask you some questions to get a picture of your situation. For
example: Where do you live now? (This will tell the Center what school
district you’re in.) What are the dates on your son’s IEP? (This will
tell the Center if the IEP is current or not.) What kind of services was
your son receiving in your old state? (This will tell the Center what
types of services your son needs.)
The PTI/CPRC will probably
share a lot of information with you. They may talk a bit about the law.
Both federal and state regulations have requirements for schools when a
child moves into the state with an IEP from another state. The Center
will want to make sure you understand what those requirements are.
With all this information,
the PTI/CPRC should be able to direct you to the right school office.
They can also advise you on how to use your son’s existing IEP. This
will be useful when you meet with staff at his new school. And you can
always call the Center back if you need more information in the future.
My daughter has been
receiving special education services for two years, but I'm not sure
she's getting all that she needs. How can the Parent Center help me?
There are several ways the
PTI/CPRC can help you. First, the Center may invite you to one of its
workshops on the special education law, IDEA. There, you’ll learn more
about the rights of children with disabilities under the law. And you’ll
gain more understanding on how the special education process is designed
to work. This information will help you work with the school system. The
Parent Center may also recommend workshops that target areas such as:
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How to Develop Your Child’s
IEP
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Collaborating with Your
Child’s School
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How to Advocate for Your
Child
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What Do You Do When
Home-School Communication Breaks Down?
Many Parent Centers
have lending libraries. If yours does, they may loan you a book or a
video. They may also suggest specific organizations or specialists
working in the area of your daughter’s disability.
The PTI/CPRC may offer to
review your child’s school records with you. Together, you can see if
anything is unclear or appears to be missing. If it seems that more
information on your child is needed, the Center will give you some ideas
on how to talk with the school about gathering this information.
If, indeed, your daughter
does need more services, the Parent Center can be particularly helpful.
They know a great deal about how to work with school systems. They can
help you explore options and develop a strategy for working with your
daughter’s school. This includes how to talk to your daughter’s school
about her need for more services. The Center can also tell you what
other options are available to you, if you and the school cannot agree.
And always, the PTI/CPRC will
be there to provide you with follow-up support, information, and advice.
Advocating for your child is a long-term commitment. The Parent Center
is there to help you and your child.
What is SIBSHOPS?
Based on a national model
developed by Don Meyer, Sibshops is a workshop providing information to
siblings of children with special needs.
What are the Goals?
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To provide siblings a chance
to talk with other boys and girls who are having like experiences with
their brother/sister who has special needs
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To provide siblings with an
opportunity to learn how others handle situations commonly experienced
by siblings of children with special needs children
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To provide siblings with the
opportunity to discuss common joys and concern with other siblings
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To provide siblings with an
opportunity to learn more about the implications of their
brother’s/sister’s special need
Sibshops is for children ages
7-14.
Contact Pilot Parents of Southern Arizona at 324-3153 for information
and Sibshops schedules.
NICHY
Special Education FAQ.
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NICHY IDEA FAQ.
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